Wednesday, June 15, 2011

Cardio Appointmet

Legends appointment went ok. He had tons of fun kicking the paper before the doctor came in lol


 We got there and the doctor listened to his chest like he normally does and said he still sounds good. But since his stats are going back and forth from 72-77 percent we were going to do a echo and see if he can wait another month or if we need to schedule it sooner. This was the first echo he has had since hes been home from the hospital. They normally take the stethoscope and listen to him which at first concerned me because from status updates I see alot of kids getting echos every cardio appointment, but at the same time I trust his doctors with everything they haven't steered me wrong yet.He's doing really well. He wasn't sedated he slept for most of it then woke up and started kicking the ultrasound tech lol. They guy kept saying man hes strong! So they finished the echo and made us a appoinment for another month. The doctor had to leave so he is going to go over it and if theres anything concerning he will call me and we will schedule the cath sooner. As of right now unless he sees something we will wait another month and then the next appointment July 15th we will set it up for sure.

As far as feeds go, He's doing excellent! He went up in percentile and hes 13 Pounds 7 ounces 24 Inces long :) My little porker. Thats about it for now until we find out if theres anything else but hoping we will be able wait and be home with us another month ♥

A few updates

Im new at this whole blogging thing so please bare with me. Legend was born 2/22/11 at 7:37 pm. I went in that day to my obs for my normal Nst testing and his heart rate kept dropping to the 60s. It would come right back up then drop again he was having the brady rythems. So never the less my doctors scared the crap out of me they did a ultrasound called the paramedics and hooked me to a iv right away in the doctors office all while my mom and my son little vic were downstairs waiting in the car because vic had to work and they didnt allow kids in the doctors office. I asked to call my mom and tell her and the doctor said no we are getting you straight to the hospital so a nurse went down and told her. I was scared out of my mind not knowing what to expect. The plan was to be induced but they threw that out right away. They told me I was going straight to the hospital to have a c-section. I got to the hospital and they monitored me for a few hours and said they might let me go home they said they were going to call my ob and see what they said. My ob said no Legend was telling us he didnt want to be inside anymore. So after a few hours of being there i had a emergency c-section. I didn't get to see him for 12 hours just 3 little pictures of him which drove me nuts. As soon as they said i could go up i was gone! He was sooo precious as he still is. At 2 1/2 days old they did his norwood i was a ball of nerves. I cried my eyes out and was so scared something bad was going to happen. I have the worse of luck i feel like and this was going to be one of those things. Thank God he did great. His biggest problem was learning to breath without help. He finally got over that then it was feeding. They finally decided to send him home with the ng tube because feeding was the only thing holding him back. Well after a few weeks he decided he didnt like the tube. No matter what i did he pulled it out mittens and all. The nurse said we could take it out and try it for a few days but if he didnt pick up on eating we would have to put it back in after a week he picked up on eating and now hes a little fatty! He's 13 pounds and is eating so much ive had to buy extra cans of formula.

Well onto now. Legend is offically 4 months old ♥ and to look at him if you never seen his scar or didn't know any better he looks like a normal healthy baby boy. So far he has dont excellent which is great but also scares the crap out of me at the same time because im always worried that its been too good to be true and whens something going to happen. While also praying for it to stay going great. Well tomorrow or should i say today is his next cardio appointment and his stats have been dropping below 75 percent sometimes so we will be discussing setting up the cath soon. Im scared and excited at the same time I want it behind us but I dont want to hand him over again. Things have seemed so normal hes starting to sleep all night and everything I dont want to have him go back for another surgery but i also know he needs it :( Well i better be getting to bed I will try this again tomorrow after his appointment with a update.